Friday, February 13, 2009

ENT


"Roses are red, sugar is sweet, and so are you." This is how AJ said bye to me today. He told me he learned about loving people at preschool. Hugging meant you love someone he explained. He keeps reciting the Roses are red....It's so precious. He also had to make his first set of class V-Day cards for the kids in his class. I thought it would be a nightmare trying to get him to write his name 16 times, but he loved it! He can write the first two letters of his name (which is our nickname for him.) I'm glad he loves school although I wish he was a bit more outgoing. He's VERY reserved and doesn't like to try many new things. He has been learning sign language, too. One of the parents is an interpreter and comes in to teach various signs. He knows some foods and some signs for various commands. It's really cool. Typical male already set in his ways??? When shown the word elephant, hi, and arms, he can "read" them although I know he's just memorized the shapes of the words. Anyway, he's wonderful.


I had to take Pupster to Hearing Conservation again to recheck his ears. He has fluid in both ears now and about a 30% hearing loss. I have an appointment with the ear, nose, throat doc on Tuesday to take the next steps. He'll need tubes most likely. I guess that's the benefit of an early diagnosis. He's never even had an ear infection! When I asked how I would've known he had fluid in his ears if he didn't have FX (the reason the regional center sent me to get his hearing checked- a procedure done for all clients) the audiologist told me that he most likely would've been speech delayed and the doc would've sent me to rule out a hearing problem. Only then would I have found out that the whole time he could only hear about 70% effectively and that for him it was like having fingers in his ears. Thank goodness for Regional Center. I hope they just put the tubes in. I don't want to wait a long time to "wait and see." Plus, with the horrible economy in CA I am facing education layoffs. I can't lose my insurance! I will try to have anything that needs to be done before that happens....if it happens, which my gut tells me it'll be ok.....

He had a great therapy session today. The infant specialist did some fine motor activities. We are working on pulling pegs out of a board and items out of a bowl. He's sitting up and very close to pushing himself up to sit by himself. He's also on the verge of crawling. He assumes hands and knees, rocks back and forth, and put out one knee. We're still waiting to begin PT which was approved for once a week.

This is a video clip of Pup in his Exersaucer (which I've been told to use only minimally) bouncing around while his big brother makes him laugh. It is hysterical. At least it is to me, but I'm his mom.

4 comments:

Vicki Davis said...

OMG I love that Video what a happy silly baby! I love your regional center they sound awsome. Mine really sucks. I am going to get my pediatrician to have Holly's Hearing checked.. now I am worried. She is always putting things up against her ears and pulling on them, but they don;t "Hurt" her. She has had one ear infection already and when we were in the hospital she failed the hearing test in one ear like 6 times before she passed the test, they said it was fluid and then it went away, but i always wanted a recheck and didn't get one. I am glad that your therapy is going so well. We only just did the peg board for the first time 2 weeks ago. Also did you say he was putting stuff into the bowl? We only learned "in" about two weeks ago also. Great Job Pupster!

Jen said...

That is really cute...and Evan thinks it's hysterical! He wants "more."

Jo said...

Hi Vicki,
Pup does the same thing. He pulls on his ears and now I'm wondering if it's because he feels pressure or something. He also didn't pass the newborn screening right away. I'm worried that this will be a reoccurring problem as I read another fragile x blog and a mom said her son was on his 3rd set of tubes. I guess I can't worry about it until it happens, but one of my biggest fears is that he won't talk. And no, we're not putting stuff in a bowl, we're learning to take it out. He seems, however, to only want to pick up the bowl and shake it! haha. He has a session today as our therapist has a meeting on our usual day. I've got to clean house!

Jo said...

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