Today-
AJ- "tantrum, tantrum, whine...."
Me: " Stop whining."
AJ: "It's your fault."
Me: "Don't blame me for your whining."
AJ: "My parents always make me mad."
Later tonight-
AJ was doing his homework. I asked him to correct something.
His reply, "I can control my own life."
I am the mother of two wonderful children, one of whom has Fragile X Syndrome. This is my family's journey.
Sunday, November 28, 2010
Saturday, November 27, 2010
Yowza!
My sister brought it to my attention that it has been a year since I blogged. I can't at this time catch up on the entire past year....at least not today, but I promise myself that I'm going to start again. Too much has happened in the past year for me to write everything, but at some point I will probably highlight some good stuff. I can only do what I can do, right?
Work has kept me very busy as well as my kids. Pup is doing well and will start ABA next week. AJ is in kindergarten now and is doing well. So, to get myself started I told my husband I would at least write something to get myself going....here it is. I was dreading having to start again as I felt so much time has past, but I really don't need to record every detail of the past year and can just start from today.
BUT, now that I'm sitting and typing, I feel compelled to write some stuff down. Pup is finally starting to try to communicate. I say try because I feel that I as his mother am probably the only one who'd understand him. I worry about when he starts preschool in a few months. How will they know what he wants? He will start a second hour of speech this next week. Thank goodness for Regional Center.
Ok, this has wiped me out. More tomorrow. Promise.
Work has kept me very busy as well as my kids. Pup is doing well and will start ABA next week. AJ is in kindergarten now and is doing well. So, to get myself started I told my husband I would at least write something to get myself going....here it is. I was dreading having to start again as I felt so much time has past, but I really don't need to record every detail of the past year and can just start from today.
BUT, now that I'm sitting and typing, I feel compelled to write some stuff down. Pup is finally starting to try to communicate. I say try because I feel that I as his mother am probably the only one who'd understand him. I worry about when he starts preschool in a few months. How will they know what he wants? He will start a second hour of speech this next week. Thank goodness for Regional Center.
Ok, this has wiped me out. More tomorrow. Promise.
Wednesday, December 2, 2009
Long Update-Post Thanksgiving
I realize I haven't posted in a long while. We've been quite busy this past month. One thing I'm grateful to my husband for is his sense of family and adventure. He loves to do things as a family so we often go to many places- even just to drive and walk around. Sometimes I think that if it wasn't for him we wouldn't go anywhere. Here's a pic from the Griffith Park Carousel, train, and pony rides. Pup had his first pony ride ever (which he loved) and AJ rode his first horse in the non-traditional pony ride sense.
Here are Daddy and AJ on the train, but unfortunately you can't see the train part.
That same weekend we went to the Town Center for "Toys for Big Boys." This 3 day event was part of the California Lifestyles Expo where tractors, RVs, Limos, Race Cars, Funny Cars, tires, and home improvement projects were displayed for all to see. We specifically went to this event to support my step-dad Randy who was representing his company that makes torque converters.
Here are some pictures of AJ and his Grandpa from that day. They are standing in front of a race car that is sponsored by Randy's workplace and is still racing today. Randy was once a member of its crew and responsible for many of its parts. AJ was so excited that he actually got to sit in a car- something many people will never get to do.
The next event of the month was the annual Christmas tree lighting we also attend at the Town Center. This year we went with Danny's mom, sister, and the Worfords. Pup was very engaged by the lights and the music as well as the man on stilts.
AJ loves the juggler.
This month we also went out to dinner for Granny Mimi's and Uncle Ryan's birthday. The whole fam went to a Mexican restaurant for dinner.

The 3 amigos at dinner. (Pup, Baby Worf, and Hank the Tank)
Last but not least we had Thanksgiving. We enjoyed two nice dinners- one at my grandmother's and one at Danny's mom's house. Unfortunately our Thanksgiving was accompanied by ear infection and pink eye. Poor Pup. He was not well. I had taken him to urgent care on Tues. and he was put on antibiotics for the ear infections. On Friday I took him back because his eyes did not look right. Sure enough he had pink eye too. Not fun. Fortunately, everyone else seemed to escape it except for Hank the Tank. Guess we should have stayed home. Anyhow, it was nice visiting with family- on both sides. Danny's tia Irma is in treatment for cancer so it was good to see her doing well. On my side it was great to see my aunt and sister who we don't see much due to distance.
I am looking forward to Christmas and the rest of the family festivities. Danny sat down last night and filled the calendar with all the holiday things that we need to do before Christmas. This includes driving down Candy Cane Lane, watching various Christmas movies, and taking pics with Santa. His goal is to fill our house with everything Christmas. There are a lot of decorations up and at first it was annoying, but I'm starting to embrace it. It is fun for the kids afterall- and that's who it's about anyway.
In AJ news, 2 of Pup's therapists this past week told me how smart they thought AJ was and how good his vocabulary is for only a 4 year old. I was quite pleased, and although I'm really not one to brag, I feel like it's because of all the books we've read to him and the experiences we try to give him. Anyway, it made me feel good. That's all.
Last but not least we had Thanksgiving. We enjoyed two nice dinners- one at my grandmother's and one at Danny's mom's house. Unfortunately our Thanksgiving was accompanied by ear infection and pink eye. Poor Pup. He was not well. I had taken him to urgent care on Tues. and he was put on antibiotics for the ear infections. On Friday I took him back because his eyes did not look right. Sure enough he had pink eye too. Not fun. Fortunately, everyone else seemed to escape it except for Hank the Tank. Guess we should have stayed home. Anyhow, it was nice visiting with family- on both sides. Danny's tia Irma is in treatment for cancer so it was good to see her doing well. On my side it was great to see my aunt and sister who we don't see much due to distance.
I am looking forward to Christmas and the rest of the family festivities. Danny sat down last night and filled the calendar with all the holiday things that we need to do before Christmas. This includes driving down Candy Cane Lane, watching various Christmas movies, and taking pics with Santa. His goal is to fill our house with everything Christmas. There are a lot of decorations up and at first it was annoying, but I'm starting to embrace it. It is fun for the kids afterall- and that's who it's about anyway.
In AJ news, 2 of Pup's therapists this past week told me how smart they thought AJ was and how good his vocabulary is for only a 4 year old. I was quite pleased, and although I'm really not one to brag, I feel like it's because of all the books we've read to him and the experiences we try to give him. Anyway, it made me feel good. That's all.
Wednesday, November 25, 2009
Sunday, November 15, 2009
Last night was a fantastic night. We went to a Mexican restaurant to celebrate two family birthdays. Pup, Hank the Tank, and Baby Worf all sat near each other in their highchairs. Pup was soooo well behaved. He ate everything put in front of him, played, laughed, walked around the table....More importantly, I didn't feel last night that he was any different. The Tank had food all over the floor....Baby Worf had to be taken out of the restaurant because he had hit his breaking point during the meal. . . Not Pup, though. He was so great- no tantrums, no crying....nothing but smiles and eating. I felt, just for a while, that he was just a normal kid, and the dinner last night made me realize that in many ways he is a very normal kid.
After dinner we had to go to Danny's favorite hot spot- Target. He loves all the Christmas stuff so we had to spend money we don't really have to further decorate our home. It is Danny's goal to fill our home every holiday season with any piece of Christmas decor he can find. Although I love his spirit, he doesn't see the price tags on anything. We usually end in some argument, but since I was so happy about Pup I let it go. And in the store, Pup was even better! He played with toys appropriately in the cart, flipped through pages of a book (never before seen!), and at one point we could tell he wanted to get out so we let him walk around and he proceeded to help me push the cart. Again, I just felt like he was like everyone else.
To top that, for 3 nights in a row he has slept all the way through the night without waking up once!!!! I hope that is a trend that continues. And for two of those nights, I put him in his crib awake, and he fell asleep without crying for me. Yeah Pup!
Last Sundy, we went to "Toys for Big Boys" at the Town Center. This 3 day event was part of the California Lifestyles Expo where tractors, RVs, Limos, Race Cars, Funny Cars, tires, and home improvement projects were displayed for all to see. We specifically went to this event to support my step-dad Randy who was representing his company that makes torque converters. On display was a race car he helped to build. I wish I knew more about cars so I could appreciate this more. AJ got to sit in the actual car which, I imagine, is not an experience many people get to have.
After dinner we had to go to Danny's favorite hot spot- Target. He loves all the Christmas stuff so we had to spend money we don't really have to further decorate our home. It is Danny's goal to fill our home every holiday season with any piece of Christmas decor he can find. Although I love his spirit, he doesn't see the price tags on anything. We usually end in some argument, but since I was so happy about Pup I let it go. And in the store, Pup was even better! He played with toys appropriately in the cart, flipped through pages of a book (never before seen!), and at one point we could tell he wanted to get out so we let him walk around and he proceeded to help me push the cart. Again, I just felt like he was like everyone else.
To top that, for 3 nights in a row he has slept all the way through the night without waking up once!!!! I hope that is a trend that continues. And for two of those nights, I put him in his crib awake, and he fell asleep without crying for me. Yeah Pup!
Last Sundy, we went to "Toys for Big Boys" at the Town Center. This 3 day event was part of the California Lifestyles Expo where tractors, RVs, Limos, Race Cars, Funny Cars, tires, and home improvement projects were displayed for all to see. We specifically went to this event to support my step-dad Randy who was representing his company that makes torque converters. On display was a race car he helped to build. I wish I knew more about cars so I could appreciate this more. AJ got to sit in the actual car which, I imagine, is not an experience many people get to have.
Monday, November 2, 2009
News!
I'm so thrilled. Pup starts and early intervention group class on Thurs. Since I'm working Danny will be going with him. It's 2 hours once a week. I LOVE my service coordinator. With all the budget problems here in CA I'm VERY concerned as our insurance is now going to be accessed. I'm not sure what that mean, however. All I know is that I'll be paying out of pocket for things I didn't have to before. Pups IFSP meeting is on Wed. I'm really concerned about his fine motor development at this point. Still working on waving, clapping....yada yada yada
Sunday, November 1, 2009
The Drs. Mc Dreamy and Mc Steamy are in.
Last night was Halloween and in traditional fashion we took the kids trick-or-treating. AJ and Pup were Drs. Mc Dreamy and Mc Steamy. It was fun this year because Uncle Bret and Auntie Kiki (my sister Karyn) came with us unlike last year. Before venturing off to the houses, we stopped by my mom's to show her the kids' costumes. Hank the Tank was also there with my sister and brother-in-law in his pirate costume donned with mustache and pirate goatee.
Then it was off to Pop Pops where we were joined by Grandma Bebon and Aunt Kelly for trick or treating. They painted their faces and The Tank was not too happy. Of course Pup was oblivious and wasn't scared a bit.
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